I am sorry that I have missed my Monday posts this month of January. As you can imagine, I have been in a ginormous state of depression (even more than usual) since the holidays. Then, I visited one of me and Jacob’s mutual friends in Chicago. Now, this upcoming week I am going back to Cambridge (a very triggering city because that was the last place Jacob and I ever lived together and the last place he was alive- but I have to take care of some Harvard related business). Then, I head to Montréal, a city I have already talked about being very important to Jacob in a previous blog post, I am visiting my fellow widow friend Élise, who I described in the same blog post. So my posts will be sporadic most of January and February. I will be back on track by March.
Anyway, I visited a close friend of me and Jacob’s in Chicago who we have both known for a decade. Traveling is so difficult but I knew I was going into a safe place. First off – we don’t make plans, he knew I would need a place to cry and tell as many stories as possible – he has so many qualities that are an extension of Jacob’s soul – he is a writer, loves cinema, knows the name’s of every actor like Jacob did, makes films like Jacob, has introspection about “what is the meaning of life?”, and the list goes on and on. One of the most beautiful moments was when he started crying and said “what you and Jacob had was so beautiful I wish I had that so badly. Just for a day.” I held his hand, but every time people tell me something like this I want to say “well, why was it taken from us? We were perfect together. Beyond perfect– we should have been married at a courthouse and had a small ceremony at my parent’s house with native flowers and twinkle lights like we discussed many times over. We should have had our four children – Eli, Ira, Heidi, and Luna. WHY WAS IT TAKEN? And why do all these assholes from high school and college marry total douche bags and get to have these things? UGH! Anyway…
One expression I am getting really annoyed at lately is something of the like – “I think that would be a good change of scenery for you” or “getting out would be good for you.” or “I am so glad you are taking this trip” (do NOT say vacation – none of this is a fucking vacation people). A change of scenery amplifies my grief – Jacob’s eyes cannot see these things. So when I go someplace, it is not only a gigantic step emotionally but it is not anything “fun” or “happy”. It is a goddamn chore to put it lightly. Grief follows you everywhere so it doesn’t matter where I go. I am not suddenly going to forget about Jacob and our beautiful life when I leave my bed. Nor would I ever want to, like I said many times, he is all I think about and all I want to talk about – always and forever. The last poem he wrote to me is tattooed on my arm for God’s sake. People are so weird (again, to put it lightly) in grief – you realize your friends don’t really care and isolation is so common for us. Luckily by removing toxic “friends” from my life, it has opened the door for new positive relationships, such as the fellow widows that have come into my life. Something else I have noticed, especially while in Chicago, is that being out in the world makes me realize how much I miss Jacob even more. TALK ABOUT SHITTY PEOPLE! Literally, when it was just me and Jacob- we could laugh at the idiots of the world, like Notes from the Underground. But now, I am left here. Floating around all these annoying, grotesque people with nothing original to say and nothing of substance. Ugh. And no sense of humor! They all take themselves way too seriously and don’t realize the importance of the present moment. Everyone just sucks. No one is Jacob. No one will ever be Jacob. That realization is fucking brutal. My grief goes from 0 to 100 in seconds in the form of sobbing, anger, and inability to move or speak. This is why I feel I can never live with the real world again. I don’t even recognize myself. Jacob wouldn’t recognize me…but I know he would understand.
I do things for Jacob like usual all the time. I was at a thrift shop and I bought Jacob three little toys I knew he would like. I had to. I just, I had to. I always did that, and I had to do it. I cried as soon as I left because I wanted him to be there with me, I wanted his voice, I wanted his touch. I heard him saying “Baby coos, I love these – I want them on my writing desk. These are perfect.” Being out in the real world is fucking tough and often, “a change of scenery” can do more harm than good (depending on where you are in your grief). UGH. How is life still moving?
So here is my advice to you – and I feel I am the last one to give anyone advice- let your grief lead you where it may. Don’t listen to people’s opinions on what you should do or how you should do it. You are a young widow – barely anyone can relate – so try your best to ignore those comments and when you can’t? Write to your loved one. I write to Jacob all the time. I talk to him all the time – because that was my life for so many years. Talking in person, on the phone, in bed, in the morning. ALL THE TIME. I cry to Jacob and hear his voice in my head every single day- especially when people say insensitive things to me. Because I know he would be so angry that anyone would be causing me any more pain. This is what you have to trust in – they love you more than anything, they are always on your side – just like in life – whether you believe in an afterlife or not – they are on your side. They love you. I remember Jacob once said to me, in tears, “I would die for you Kaitlin. If I pushed you out of the way of a truck and I died, I feel like my life on this earth would be so full of purpose. I truly believe that.” That memory makes me sob uncontrollably – every memory makes me cry – but he was so genuine and sincere when he said that. That was the depth of our love. Because when he said that to me, I had felt that exact same way so many times for him – I just couldn’t express it as beautifully as he could. He was looking at me and holding my hand and telling me how much he loved me. That was and is how deep our love is.
In September of 2015, Jacob and I embarked on a cross-country road trip from Florida to Washington State, we had just gotten out of college and I was offered a job as a biologist in Washington State – I talked it over with Jacob (as we always did with big decisions) and he told me that he wanted to live somewhere like Washington so badly – somewhere new and different. I remember he was the first one I called when I found out and he said: “Baby this is so exciting, I can’t wait- how awesome! You have to take this job! Ahhhhhhh! And you know what? I like the rain”. We both would soon realize that Washington state is pretty much horrible weather-wise except for two months out of the year. I remember after 3 months living in Olympia (the capital of Washington) I started to feel major seasonal depression. Anyway, when I think about the first time I told Jacob about the job offer, I close my eyes and It feels like it was yesterday – I remember where I was, at Archbold Biological Station, a short-term job, and he was spending most of his time at my parent’s house that summer of 2015. I visited every weekend and most weekdays. I couldn’t go a day without my Jacob! And since he had just finished college (he was only one semester behind me) that summer he was only an hour from me back in our hometown (of course not our real home, that is Tallahassee, don’t forget). I remember making a pros and cons list with Jacob and my mom and dad and after careful consideration, we decided – yes, let’s make our first move together as adults. Let me just say, the cross-country road trip deserves its own post – because that is filled with videos, pictures, and so many stories. So this post is very short today. Mostly short stories of me and Jacob in Washington. Outside our house in Olympia, on a clear day, you could see Mt. Rainier perfectly – such a monolith of a mountain standing at 14,411 feet – Jacob and I loved the hill on 5th street because the view of the Mt. Rainier on a clear day was spectacular. Olympia also had a ban on all chains – so everything was local. We both loved this. Jacob and I loved this food truck called Nineveh, a combination of Egyptian and Persian food and we seriously LOVED it. Total obsession. It was literally 2 minutes from our house. Jacob would say “Can we get Ninev’s tonight, please?” We had our own language called “yakescoo speak” where we shortened everything, I have a list on paper of all our shortened words and our special language. Anyway, I would always get the falafel, Jacob would always get the Shawarma – and we would also get the hand-cut fries (that were covered with amazing spices – some of the fries best we ever had) and fried cauliflower. I remember Jacob said once “I don’t know what they put in those fries, but they are dangerous. So fucking good”. Even the drive-through hamburger joints had names like “Tom’s Burger’s” – no McDonalds or Wendy’s. All local. Jacobs favorite part of it all? Four local bookstores in a small town like Olympia. His favorite bookstore was called Orca Books, again we lived downtown so we could walk to these places really easily. He loved this bookstore for many reasons, including that there were many cats in this bookstore and they loved to jump on Jacob’s lap and knead him.
Another perk of living downtown was that there was a record store only five minutes from our house called Rainy Day Records (Jacob loved this place)- and you could buy records, cassettes, and even rent movies. And when I talk in minutes I mean walking, not driving. Jacob and I would spend hours on our days off looking through vinyl together here. Jacob came home one day and said “Coo! You can rent movies there!!! How awesome is that?” It was great, we felt like we were living on another planet completely in Olympia. We also lived across the local library so we could get books and movies all the time, for free. Jacob had a true gift for finding the best movies instantly at libraries. He also found many “Coo movies” (his name for my kind of movies) – and he used to say, “Oh baby, this is such a Coo movie we have to watch it.” Not bad movies – just ones I hadn’t seen and he knew I would love – like Groundhog Day, for instance – or Plains, Trains, and Automobiles. We watched almost every Woody Allen film together and Mel Brooks films, and we would request them too. For example, “Love and Death” was the first Woody Allen film I ever watched, and Jacob and I saw it together at the FSU student life center – Jacob had already seen it and he said “I can’t believe this is the first Woody Allen movie you are going to watch, how awesome”. I loved it-and it will always be my favorite for that memory and that reason. Anyway, we were able to order it at both Rainy Day Records and the Library. It was great. I also just want to say that we both loved John Candy – especially when Jacob introduced me to SCTV (a much funnier version of SNL with John Candy and Eugene Levy just to name a few…)(this was his favorite skit of all time) and he also introduced me to Cannibal: The Musical, one of the most hilarious movies I have ever seen and the creators of South Park made it. Jacob would always sing to me “Shpadoinkle Day“. I have a video of him singing this song regularly and in his opera voice and I watch these videos every single day. He would look at me in the eye especially with the line “As I ride with my girl, she’s my best friend in the whole world.” Even though in the movie the line is declared to a horse, Jacob always made that line about me and would look me in the eye and kiss me gently while he sang it.
Anyone that knows Jacob knows he hates coffee – but, he loved the coffee at Olympia Coffee Roasters– I remember one time he said: “baby, that is the best coffee I have ever had and you know I HATE coffee – truly next level. I would drink this every day.” We also had a tradition (so many, I know) of going to Darby’s Cafe for breakfast – they had this AMAZING breakfast item: yogurt, strawberries, blueberries, and granola rolled into a tortilla and deep fried covered in whipped cream and more fruit. Out of this world. But of course, Jacob always had the Corned Beef Hash. So cute. I could talk about our life in Olympia for days, for instance – a little corner store called “The Little General Food Shop” was literally around the block from our house and sold household essentials and very progressive food products (Oregon ice cream Jacob loved and I would surprise him with).
But I want to talk about our first hike to Mt. Rainier – which I have barely touched on- I just have so much to say I get disoriented and end up switching topics easily. We had been on other hikes in Olympia and in Thurston County, but nothing intense like Mt. Rainier. So, August and September are really the only months you can visit Washington because the rest of the time it is gray, rainy, and just… well, hazy and gray. But now, I am longing for the weather in Olympia. I wish I was there now. I hate the sunshine here in my parent’s house in Florida. The feeling of the sun makes me sick – that Jacob cannot feel it. I am crying as I type the words. Also, I cannot energetically align with the sun – It doesn’t fit my mood. I want rainy days and hazy weeks full of just…gray. Like in Olympia. So basically, I want Washington weather right now. Okay: onto our first hike. I am going to leave our first hike mainly in photos. It was a hard hike, no doubt, but it was uphill to see Mt. Rainier, and then downhill the entire time with the view of Mt. Rainier in front of us the whole way. We couldn’t figure out which was worse – uphill or downhill because downhill really fucks up your knees. Jacob voted that uphill was much worse. I told him I couldn’t decide, but my knees are really bad, so downhill was very hard for me. They both were super challenging – but the view was beyond amazing and our first true hike in Washington Jacob declared as truly magnificent. Even though his favorite hike in the whole world still resides in North Carolina, he absolutely loved the scenery and our first hike at Mt. Rainier (and we had many more there, our Thanksgiving hike in 2015 at Mt. Rainier we had snow chains on Jacob’s car and played in the snow up in the mountains). Also, there were moments during this hike where we were on the edge of the mountainside (actually, many times during this hike) and Jacob overcame some of his fear of heights. I was so proud of him. I always was.
Broken heart syndrome is a heart condition that’s brought on by highly traumatic situations, such as the sudden death of a loved one. People with broken heart syndrome may have sudden chest pain or think they’re having a heart attack. It is also known as “Takotsubo cardiomyopathy” in the medical world… blah blah blah. But the story is pretty interesting: The name “Takotsubo Syndrome” comes from the Japanese word Takotsubo which means “octopus trap,” because the left ventricle of your heart takes on a shape resembling a fishing pot. (It is real, people!) This cardiomyopathy is now a well-recognized in the medical community as an actual cause of acute heart failure, lethal ventricular arrhythmias, and ventricular rupture. Yeah, those words mean nothing to me either. Google them if you are interested, I guess. My biology major was very anti-pre med (the pre-med students had HUGE ego’s where Jacob and I went to undergrad), and especially now, after experiencing the coldness from the night Jacob was taken from me, and the trauma, I really have no desire to even hear medical terms- as I have mentioned in previous posts- when I see an ambulance I have to pull over and try to contain my vivid flashbacks, when I pass a hospital I have to pretend it doesn’t exist. But, I do not want to talk about this. I bring this broken heart syndrome up because there seems to be a common thread among a lot of widows. Because many people think those in debilitating grief look “perfectly fine” on the outside, they reject our grief or think “we are getting better and moving on” all the while our insides are filled with massive holes, crippling pain, and despair that goes unrecognized and dismissed because it is not seen physically. I will take physical pain over this emotional agony any day. And the word “emotional agony” doesn’t even come close to describing how I feel inside.
Here is something else about the physical recognition that widows get (and it is again, very common – my dear widow friend Élise told me people have said this to her and continue to say this to her all the time) and, unfortunately, I have heard it as well. Many have, and I am getting this out right now in defense of widows everywhere. The grief diet we have and how people say the most stupid shit imaginable. Here is how the conversation goes down (or something of the like). “Wow! You look great! You’ve lost so much weight. Did you start running or something?” “No, my partner died.” “Well, whatever you’ve been doing, keep it up! You look amazing.” Are you fucking kidding me? I look good? First off, do you think I GIVE A SHIT about how I look when I have lost everything? My spouse, our apartment, our children, our entire future together- do you think this weight loss is healthy? Do you think this is wanted? HOW STUPID CAN YOU BE? Jesus. People think you want to hear this kind of garbage but no, they need to think again. It adds more salt to the wounds. My nutrients come from bread and butter. And that is starting to wane quickly into no appetite for anything – not even bread. Yeah, yeah – it isn’t healthy – BUT I HAVE NO CHOICE. It isn’t a choice. My therapist explained it pretty well – she said “we as humans have an animalistic instinct to nourish ourselves with food, water, etc. in typical, normal healthy conditions – but you do not want to live, therefore your body is completely shutting down, lack of any appetite is part of the last phase, it is unnatural because what you are going through is the most unnatural thing in the world. Your depression is killing you, mentally and physically”. People just do not get it – when you are in horrible grief and deep depression you do not want to eat anything. You shut down. And you know what? I know in my heart not only does Jacob understand this but that he would react in a similar way if the situation was reversed. I wish for that every day- “why was he taken? why didn’t you take me? He was such a gift and light to the world – why didn’t you take me?” People tend to make comments of what made Jacob and I happy (I’m sorry, but I know that best) but anyway, the point is- he/we liked to do these activities…when we were both alive and together. Yes, we enjoyed cooking and taking walks in the forest – WHEN WE WERE BOTH ALIVE AND LIVING TOGETHER. Yes, we loved trying and enjoying new food and spending time with children and watching movies and taking showers/bubble baths together and new adventures and drinking hot chocolate and celebrating the holidays and feeling the cool breeze on our faces – WHEN WE WERE BOTH ALIVE AND LIVING TOGETHER. I mean, what do you not understand about this? It is so easy for people to just word vomit stupid shit and offer platitudes in their comfortable houses with their family and spouses right by their side. Or even friends by their side, for that matter. I will say it in every post – Jacob has been my one and only since as long as I can remember. He was my best friend. My only roommate – ever – since 18. My entire world. He was, was going to be, and is my all and everything. When you talk about having children together from such a young age – when you set a wedding date – when you build a future together from such a young age (middle school, cough, cough) and when it is all taken from you in the blink of an eye, yeah – your “you look great!” comments make me want to vomit. Do not mention my weight, that my skin looks good, my outfit is nice (I am literally picking from a pile and throwing on whatever smells clean when I have to leave the house for a doctor’s appointment) or my hair. Which, by the way, not only goes unwashed for weeks and weeks but now I just wash it under the sink – the whole getting into the shower, getting wet and changing clothes is too much of a chore. I’m tired of all this sugar coating nonsense – THIS IS WHAT GRIEF LOOKS LIKE. I am sorry if it makes you feel uncomfortable – try living it.
I just feel like only other widows understand this kind of grief… and even though no one can fully understand (even other widows) the depths – I mean deep deep depths of our love – they can relate on a level no one else can. I went from having 0 widows in my life to 3 that check in on me regularly… I will take that. They let me cry, tell my story, and can relate to the endless horror and misery. I hear their stories. And even though they are far away… I feel that maybe it is a reason to turn on my phone, and hear a voice that doesn’t judge, project, add stress, give me “wisdom”, cruelty or tell me what to do – but they know all the right things to say.
You know what box sitting in my childhood home (where I am currently living and all of our possessions are) makes me most sad? Well, one of the boxes that makes me most sad. Our kitchen boxes. All of our kitchen supplies have been with us since 2010 – the records and books have too, so those boxes make me beyond sad – but the kitchen boxes bring memories of how we would cook together, how Jacob would surprise me with meals so often (even vegan meals, I wasn’t vegan, but he would research because he was so curious like that) and our little plates and mugs we would find at thrift stores. One mug in particular I know I will break down when I eventually see it. All the knitted mason jar covers I would make for him. Our re-usable metal straws. The hanging fruit basket he bought us. The silly aprons he bought me. Our vintage goodwill soup bowls we loved. These are things we have had for so long…even the kitchen towels with botanical plants on them and Simpon’s characters. It just makes me want to crawl into a hole.
Currently, well for a while now, I am reading Jacob’s favorite books and they bring me some comfort. Movies are off-limits right now because he introduced me to all of it – Mel Brooks, Woody Allen, Charlie Kaufman, Wes Anderson (in 7th grade mind you – so, 2004 for me, 2003 for him) – it just is way too much to watch any movie – and new movies his eyes cannot see and I know he would love (like The Meyerowitz Stories and the second season of Stranger Things, both on Netflix) make me sick… because he talked about watching them together. He read about them coming out. I cannot even log into our shared Netflix account (Yakescoo). It is one of the biggest triggers I have because it was a huge part of our lives and it completely influenced and shaped me and this shaping was done all by Jacob. The last movie we ever saw together in theatres was “Baby Driver” which he loved, as did I, and it was August 4, 2017 – exactly one month before he died. I remember our walk home that night was beautiful. We held hands the whole way home and with the colder weather, we could tell Fall was coming. He kept his ticket stub from that night in his wallet. Jacob was like that, he kept all the movie ticket stubs he went to with me in his wallet or in his “blue area” as we called it – a blue colored box with tons of papers and cards shoved inside. I remember on our walk home we passed a garden level basement, that of course, Jacob pointed out because he was so observant, that had lights flickering and a broken window and Jacob said “Kaitlin, look at this-this is the stuff of nightmares right here.” He looked around, could tell I was scared and was like “Yeah, we need to go. Fuck this” I feel like that walk was yesterday.
Listening to our favorite records is also so hard – but necessary sometimes because it was what we did all the time, every day – as soon as we both got home, a record was put on and we would decide together. Just one of our many daily rituals. But certain things I can listen to and others I cannot. We couldn’t back out of the driveway without music decided upon. If I was driving, “Jacob you are the DJ” or if he was driving, “Coo you gotta be the DJ for us”. If I found out about a new artist (usually from the past) or he did – everything stopped. We listened together. Or if I would find out about a new modern artist that he would end up loving like M. Ward he would say “Coo, you can’t hide this stuff from me!” He loved M. Ward and one song, in particular, he would play for me so often, was Eyes on the Prize. That song is incredibly hard to type let alone listen to – he not only played it for me but he would sing it into my ear as he kissed my neck. The lyrics for him were so important. “Wow, what a great line” he would say in the car. He was always completely engaged. If you started to talk in the middle of one of his favorite songs, or any song he put on, he would pause it – listen to you and then restart the song. I picked up that habit too! “It is a good one to have”, we would say. We were constantly excited about discovering new music. For instance, when I first learned about Jimmie Rodgers, Jacob was obsessed. He read about him, listened to all of his music, and for 2-3 months had a complete fixation. “Classic Yakes!” I would say. Same with The Pet Sounds album by The Beach Boys, Blaze Foley, Buddy Holly, Leon Redbone (this was his favorite Redbone song), and Doc Watson. Just like Jacob showed me Robert Johnson, Leadbelly, Daniel Johnston, The Pixies, Blind Blake, Bob Dylan***, Leonard Cohen, and Hank Williams (well we both came to Hank Williams at the same time – a story for another time). The list goes on and on… I came back from Rochester, New York (where my mother is from) in 2011 with what turned out to be Jacob’s favorite and most prized vinyl of all time – and again, that is a longer story for another day – but it is one of the rarest 1920s delta blues compilations in the world, you cannot find any of these songs online. If he read a poem that brought him to tears or really moved him it was “Coo, come in here quick! You have to read this.” If I read a short story I knew he would like, I would give it to him immediately. Such as, Truman Capote’s “A Christmas Memory” which turned into one of his favorite short stories of all time, and a tradition that we always read it together on Christmas… since like 2013? He would read me Stephen King short stories especially the magical realism ones which he loved most, and we would listen to David Sedaris stories while cuddling together. If one of us wanted to write or cover a song together, we would both play guitar and sing – or I would play the banjo or he would play the banjo. Or one of us would play our cigar box dulcimer, “Wandering Bear” we named it. Sometimes, listening to music is too painful. Other times, it reminds me of the memories I have to hold onto and I cry and cry for hours and it reminds me of the depths of our love. Our music and records, just like his poems and love letters are reminders of our soul connection to each other – forever.
I am going to leave this post with a poem from the collection I self-published, which I realize probably very few have read but, what the hell? Maybe you want to read some suffering. I know I do. There is nothing relatable about self-help books or all that “happiness and rainbows” bullshit.
It is not uncommon for widows to spend days in bed. But I must tell you, I have spent most of the last year (now, approaching 15 months- Jesus, how can that be?) in bed. In particular the last 5-6 months I can barely get out of bed to go to the bathroom and I haven’t been able to walk to the kitchen. I go to therapy … my psychiatrist once a month…and recently, this brain procedure… and those are about the only things I can do. I can’t even drive myself to these things. It is not out of a lack of “trying” or because “I can’t force myself” or because I can’t “just will myself out of it” it is because I am crippled by grief and in serious depression. The weight of grief has caused me to completely melt. I cannot move. It is like the force of a freight train is on my chest. The depression from grief (losing my best friend, childhood sweetheart, partner, soul mate, our unborn children, our future, and life together will ALWAYS be there… obviously). But this clinical depression has turned into the darkest cloud – the deepest hole – the dreaming of death…the hopelessness… the feeling of no reason to live. The guilt. This is debilitating. Yes, believe it or not, I am really trying to stay alive. Desperately. This is why I go to therapy twice a week, am on medicine and trying this procedure. This is someone who is trying, as pathetic as it may seem this is all I can do. That and cry…and cry and cry… write and talk to Jacob, and sleep with his ashes. Sometimes I really feel my only reason to live is to keep our sweet cat Abe taken care of…
I think of Jacob’s hands so often, how delicate they were, how long and beautiful they were as they stroked my body. The milky white color. I think of every part of him. I miss the deep emotional connection, how we were the only two to understand each other- the inside jokes, the cynicism, the silly nicknames and language we spoke and humor we shared. I think about how literally every person we encountered we felt the same way about – no one was absolved of being made fun of or joking at something they said. Never in a malicious way (well, only if they were an asshole) but always in a lighthearted way. We just didn’t need other people, it was just us and we loved it that way. I remember when we were in college, we were invited by our mutual acquaintance who lived in our apartment complex to a “Christmas get together”. She told us it would be really intimate. Jacob and I both thought she was
a little weird – but she was so nice to us – brought us cookies and homemade jams all the time- we couldn’t say no. So we went. And man, was it awkward. And no A/C either. Jacob was sitting on what looked like a pop-up parade chair found at a thrift shop as we were both using napkins to keep our foreheads from sweating. We both were listening to the most vapid conversations. But, the worst part was that we didn’t know it was a “White Elephant” party – you know, where you exchange gifts. We didn’t bring anything – nothing. We thought it would be an event with some soda, some beer, some snacks and that was it. So Jacob and I received gifts, even though we didn’t bring any. We both got these CVS blankets that were Christmas colors, we literally saw them the day before at the CVS on Call Street near FSU. I think we still have them too… Anyway, we felt bad that we got these gifts and didn’t bring anything.
Jacob and I later said, we didn’t feel that bad because we got the shittiest gifts ever. But, without bringing anything we kind of felt obligated to stay longer. Jacob made a joke about our friend’s (the one who invited us) boyfriend – he was from Norway and didn’t really understand the difference between college and university so he was wearing a “Tallahassee Community College” shirt. Jacob was like “Coo, did you see his shirt – what the hell was the deal with that? Why would anyone advertise that they go there? Jesus.” And Jacob went to TCC before he transferred to FSU, so it wasn’t an egoistic comment, it was just – really odd. And hilarious. “Go Eagles!” Jacob laughed later (The Eagles were the TCC mascot). The whole night was so bizarre. Jacob and I were incredibly eager to get the hell out. Finally, after three hours we got out of Dodge and walked back to our apartment. We joked about how weird the group of people was – one lone international student in the corner just staring at all
of us “I thought he was going to shoot up the place” we joked, a couple preppy girls that didn’t even say hello to us, a girl who was obviously a physics major and really into talking about her research, and a couple engineering guys talking about…I don’t even remember. Conduction? Jacob tried to make some jokes with these people but they weren’t exactly the type to get humor… I remember he even said, “Jesus, this is a tough crowd.” I would say that often in high school and he loved that expression. See? We used each other’s expressions and our vocabulary became one. Our reactions, our thoughts, everything became one. I remember Jacob said “Baby, I don’t think you realize how bizzare and amazing it is that we get the same songs stuck in our head ALL THE TIME.” It was really true. I would start singing a song and he would say, “What? I was just thinking of that song.” Or he would start singing a song and I would say – “Did you sing that before just now? It has been in my head all day.”
He thought that was so incredible. He would bring it up all the time. Just another sign we were twin flames – true soulmates. Our energy was the same – about everything and everyone. We not only felt completely understood by one another but comfortable with each other in every capacity.
Our society thinks that “happiness” is the ultimate form of success. I think that is bullshit- so did Jacob. I remember an extended family member said one time (a couple years ago) something like, “You are so young, you should just be happy.” I rolled my eyes at that one… because the truth is, life is fucking hard and full of suffering no matter what age.
And I realize that now more than ever before. There is no such thing as just a happy life. And you are setting yourself up for failure if you think that is the acme of existence. No one is getting out alive or without suffering. For me? Being with my childhood sweetheart, marriage, growing old together, a big family – these were the things that I thought were set in stone, of course they would happen – these were things that Jacob and I talked about ALL THE TIME. I remember Jacob looked at me in our Glenview House (the last place we lived in Tallahassee) and gently touched my hair and said, “I can’t wait to take care of you when you are pregnant. Pregnant coos will be out of control with her mood swings and cravings but I cannot wait to take care of you every step of the way. At 3 AM when you want fries and pickles. I love you so much Kaitlin.” When he used my name, I knew he was going to cry. He had “that look” which I have captured on video two days before he was taken from the world, “that look” of true love – that he loves me so much he cannot contain it. I know that look so well. I don’t want to experience life without Jacob. He is the love of my life – and always will be. You don’t get a love like this often – it is 1/100000 lifetimes kind of love we had. I look around the street and I see couples, bickering and fighting. I see mom’s scrolling on Instagram as their toddlers try to get their attention. I wonder to myself “why them? why do they get everything I wanted with Jacob and that he wanted with me?” I am sure you are thinking to yourself the same questions. I wish I had answers. I would have never dreamed of this miserable, horrible reality- which is why I stay in bed. Trying to stay frozen in time.
I miss the emotional, the mental, and the physical connection on such a deep level it makes my insides hurt. The kisses, the hugs from behind, the cuddling – literally every night we cuddled. EVERY NIGHT. We discussed everything together – from books to art to cinema to music (oh music…) to writing screenplays together to writing music together to playing music together to Jacob loving me so much he would clean my ears for me with q-tips every night – he loved to do it. He always said “Baby, I love taking care of you. Let me do this.” I mean, to everyday interactions to recipes to EVERYTHING for so long. This is why I can barely get out of bed. This is why simple tasks like responding to an e-mail, or a text message is like hiking up a mountain. It isn’t laziness. It is grief. It is depression. It is not wanting to be alive. I want his touch, his love, the sweet kisses on my neck, the showers we shared, the way he made me feel – the way he constantly praised me and the way I praised him. I want to give him the love and support I always did, the encouragement I offered without a second thought because he was the love of my life and I would do anything for him, and I want to give him the unconditional love I showed him and he showed me every day. I want our life back. I want our house back. I want our dishes back. I want our library and bookshelves back. (not in boxes, that is). I want to kiss the sweet freckle on his left ear as the sun rises. I want to give him a loving hug in the morning from the back because he hated mornings. I am telling you he was the most perfect spouse. We were perfect together. This is why I lie in bed all day. Not out of a lack of will – but out of a lack of will to live. Jacob and I loved Hank Williams – we have many of his albums on vinyl – the real Hank Williams – not this bullshit Hank Williams Jr. garbage. We played a lot of music together, which I have recorded some of it, thankfully – but only some. Jacob had the most beautiful voice (and I feel so incredibly grateful he shared his voice with me because he rarely did that with anyone). He could sing “I’m so lonesome I could cry” (listen here please) It is a very hard song emotionally and vocally to sing – and he could sing it perfectly. We loved to sing it together but he had to take the lead because I sure as hell couldn’t hit those notes. Jacob said Hank Williams was quite possibly his favorite voice of all time – Hank Williams and John Lennon. Anyway – getting off focus here, as usual – there is a line in the song…
Did you ever see a robin weep When leaves begin to die? Like me, he’s lost the will to live I’m so lonesome I could cry
I have lost the will to live – and I know exactly what he meant when he wrote this song.
Another reason not to feel bad about not getting out of bed – for me? Jacob. I trust that he loved me unconditionally and therefore, my lack of ability to function is something he would understand. Because he loved me and understood me more than anyone, he understands how devastated I am because we both lost our future. Jacob wanted everything I speak of – and we talked about it all the time. Heidi and Eli, our two little children. I feel that every tear and every ounce of pain I go through he somehow understands – I cannot explain it but I just feel that he understands why I cannot function because that is how much I love him, how much he loves me and that is how deep my pain is. He understands. When you are tired of insensitive comments that make you feel queasy, think about how much your person loves you. More than anything. They understand your pain and would never judge you for it – never in a million years.
I recently read an e-mail from Jacob from June 2013 – we were away from each other for a little over a month – and he was describing how he was so sad and in pain without me, he said in this e-mail that he didn’t even want to laugh, watch movies, or do anything without me. He didn’t want to get out of bed. He said he felt like he was in grief. After reading this the other day, I finally felt understood…5 years later, by my one and only – my twin flame – my spouse and love, Jacob.
I recently told our old landlord (from our favorite house (see the post here) in Tallahassee that Jacob had passed away, I had been missing a few random things and I wanted to know if she still had them. Unfortunately, she sold our little house. After she started to cry and talk about how much she loved Jacob, she also said something that I forgot people used to say to us, “You two were the cutest couple.” I hadn’t heard that in over a year, and I forgot that was something people told us often. I bursted into tears (as usual) because I knew that I would never hear that expression in the present tense ever again. It also made me unbearably sad because I felt like people will forget about our life – that we even had a life together – without being told – never to be seen in real time. No one knew of our intimate day-to-day life (except me and Jacob) so of course, I will never forget – but everyone else, it seems they will. How could they not?
The way he did the dishes and aligned the mason jars perfectly stacked and always to the left of the plates – the way he would keep “fun cereals and snacks” on the counter instead of in the pantry because he didn’t want to forget about them in the morning. How much we loved to buy the tub of Nestlé Toll House cookie dough. But he always would burn them and say “coos, can you make them please?” How much he loved the holiday Pillsbury cookies and each new holiday there was a new shape – ghosts, pumpkins, snowmen, Christmas trees. He would call me and say, “should we get the ghosts or the pumpkins???!” He would burn those too – so I always made them. “Thanks baby coos!” He got very frustrated when he would burn them – I would say “You are far too intelligent to deal with these simple matters, I got you covered baby Jakes.” It was a huge tradition to get those Pillsbury holiday cookies – we realized though that when we were kids they would come in a log form and now they come in a tray form. We liked the log… How excited he got when we would get whole milk. Sometimes he would come back from a gas station with some sketchy whole milk and I would say, “Jakey – this is uggos, please let’s go get you some real whole milk.” When we lived in Olympia, Washington they had the best whole milk, according to Jacob. He was the whole milk expert. If anything was in the fridge, he would forget. It was so cute how he kept things out on the counter – always in a particular way. Never haphazard. Now, that day-to-day living is just a memory. I want to go back. These realizations are not easy. I never thought I would lose the love of my life- so when people would say, “you two are such a cute couple”, I always said “aw, thank you”
but never thought twice about it, because I knew how perfect we were for each other and how lucky we were. Now, I know that no one will ever know “Kaitlin and Jacob” as a couple again, and I will never hear these words again. I am going to start using my real name in these blog posts*. For us, there was/is no Kaitlin without Jacob and no Jacob without Kaitlin. I am nothing without him. I am truly a body without a soul. I mean, Christ, our old landlord, and my old boss, Carla knew more of our life together than anyone else. It will all just fade… and time will do nothing but encourage the haziness of what we shared. I feel like we were a clear photograph
and now it is entering into an out of focus blur. This is why I write and write in journals, I voice memo memories into my phone, I write in word documents every day so that my memories of Jacob will never fade… but the day-to-day living without him will become farther and farther away. And that is always clear when I wake and he is not cuddling me.
This time of year fucking sucks. Okay? September Jacob died last year. We were supposed to get married in October 2018 – Abe as the ring bearer (Jacob’s idea, of course), November- a holiday we both loved and spent exclusively together since 2014, because we were each other’s family – now, completely gone. We had a routine of playing Charlie Brown’s Christmas on vinyl and Bird and Dizz (Charlie Parker and Dizzy Gillespie) – on loop- all thanksgiving long on our record player. Man did we love listening to those two albums on Thanksgiving. I can still see Jacob walking into the living room to change the side of the record. Like yesterday. We would watch Plains, Trains, and Automobiles. “Baby, John Hughes movies are perfect for Thanksgiving.” We cooked my mom’s casserole she made us in college. ***By the way – every time we came home from college (2010-2014), Jacob spent the night before at our house, and woke up with us – the first time he ever did I said “You will wake up to the smell of my mom’s casserole and the sound of the Macy’s Day Parade on television.” As we slept together in my childhood room every year in college before the Fall holidays, we started to bring our own traditions such as our Thanksgiving vinyl – especially Charlie Brown’s Christmas with us. Jacob would always trim the tree with us shortly after. Me, my mom, and my dad haven’t put a tree up since Jacob died – no holiday decorations – and it will be the same this year. Jacob was part of this ritual. I remember the first time he trimmed the tree with us, my dad introduced him to eggnog and sprite. “Mr. Griffith I always hated eggnog but with the sprite, wow, it is so good- I mean, how good is that?” So, I know these traditions are jumbled and all over the place (welcome to my brain) but these are some of the early things me, Jacob, my mom, and dad did for those four years in college. Last Thanksgiving (2017), Jacob and I had plans to take the train from Boston to NYC and meet my parents for the Macy’s Day Parade. Tickets already booked – Airbnb already booked – and Jacob was so excited to take a train. “Baby, I love trains – I wish they were more common here in the United States, I am so excited (emphasis on the SOOO as he came to hug me) to take a train for Thanksgiving.”
So here we are, as stupid fucking morons feel compelled to holler “Happy Thanksgiving” to everyone on the street, it makes me break down, cry, and then get angry that the world stole our life away. I woke up this past Thanksgiving morning sleeping with Jacob’s ashes and talked to him about what we would be doing. If I would be pregnant yet… what music we would be playing and how we would be cuddling and easing into our morning. How he would have probably surprised me with coffee. Or that I would have made him an Irish latte (half Early grey with honey and half frothed whole milk- you can froth milk like at a coffee shop if you heat it up over the stove and then pump it in a french press.) He loved this! “Baby, can you make me one of those… um, um, Irish lattes?” In a cute little voice.
Just – please – please- please – stop saying “Happy Thanksgiving” “Happy Holidays” and the worst of all for me – “Happy New Year”, because it is another year that Jacob will not see. I am truly terrified for next year because I will turn the age (27) Jacob was when he died – and I do not want to live past his life on this earth. This time of year is just adding salt on the endless goddamn wounds. And you do not need to tell everyone “Happy” anything. Just shut the fuck up and keep your happy cheer to yourself.
I WILL NEVER MOVE ON
Any widowed person will tell you that we have heard, time and time again (except for recently as I just isolate myself in bed all day and shut off my phone as to not hear them), the endless parade of well-intentioned, thoughtless comments that come our way within MINUTES of losing our soulmates – Everything happens for a reason/ Time heals all wounds/ God never gives you more than you can handle/ It was God’s plan/ We all choose our own death (some stupid pseudo-Buddhist shit)/God needed another angel/ I know exactly how you feel (UGH UGH UGH UGH)/ You need to get over this. That of course, as you have read in previous weeks is not the full list of “fuck you’s” in the chest. The truth of the matter is, nobody could ever know what we are going through (thank God) or what it IS until they themselves have gone through it. Yes, people want to help – but they don’t stop to think about how insensitive these clichés can feel when heard by someone who is in tremendous and VERY REAL LIFE OR DEATH KIND OF PAIN.
Kelley Lynn Shepherd said the king of all insensitive comments is: “You Need to Move on.” And I have to agree with her on this. Completely.
… I am going to summarize some of the things she said:
Let me say this as simply as possible:
THERE IS NO SUCH THING AS MOVING ON.
It is a lie
It is a fairy-tale concept, invented by those who don’t know what to say.
It is invented out of ignorance and fear.
They want you to move on so that they can feel more comfortable with your presence. (yes I know – I am awful company – completely aware).
It is as if they are saying to us, “If we can all just pretend that this scary death thing never actually happened, then it would simply go away.”
Except, guess what? It never goes away. Not for me. Not for us. Not for the person living inside of it. It becomes you, and you become it, and you become wrapped in each other. Death and life become one and everything is different forever. The death of a spouse or partner is different than other losses, in the sense that it literally changes every single thing in your world going forward. When your spouse dies, the way you eat changes. The way you watch TV or movies changes (for me, I am unable to watch movies at all because I never watched ANY movie in the past 7 years without Jacob. At night or out in the theatre. So the fact that his eyes cannot see what I know he would love makes me want to vomit.) People disappear from your life entirely. Your job changes (graduate school for me- a career? seriously? the whole reason I even wanted to be a teacher is so I could financially support Jacob and I both so he didn’t have to work a shitty job and he could focus solely on his writing – collect a body of work, which he never got to do – like Stephen King’s wife did for him). It was a family decision between Jacob and myself. Your self-esteem changes big time. Your self-worth. YOUR DAILY FUCKING RITUALS. Your mentality. My mental state altogether… The way you breathe. The way you walk (or the lack of walking). The mornings – the constant reminder Jacob is not there when I wake up. Your physical body (I can only eat toast… literally.) Your hobbies and interests change (none for me anymore). It all seems so futile and empty. EVERY. SINGLE. THING. CHANGES. For me, our apartment/house is gone – for the first time since 2010 I am back living in my hometown, with my parents, in my childhood bedroom and not with Jacob. Not in our little safe spaces we created together. Not with our mini Christmas tree and stockings for each other and then finally in 2016 a stocking for our cat Abraham with a fish on it. Jacob loaded it with tons of treats “cheese middlez” and “tuna temptations” and little mice toys. Jacob worked as an assistant manager of a toy store for a while in Tallahassee late 2016 – March/April 2017 (funny story about when my parents came to visit him there one day I will get to it) and anyway, right next door was a locally owned natural pet store that always carried new products from Japan for cats – like full fillets of salmon and cutting-edge new treats Jacob would come home with. I remember he got Abe two huge fillets once and I gave Abe the whole thing and Jacob said, “Baby, we were supposed to give them to him together!” I said, “Okay, I’m sorry but he was jumping up and down wanting the rest of it – you give him the other one!” After Abe got both he was meowing and meowing jumping on the kitchen table, following us from room to room – it was quite adorable. Jacob was like “Jesus, buddy – there is none left! I will get you more tomorrow!” He would pick him up, “Oh my little fish breath wonder.”
Anyway… I was handed a new life I never asked for and DO NOT WANT. Jacob and I wanted marriage-so often we just were like, “let’s just go to the courthouse and get married and have a small reception later on… ” That was me and Jacob’s style for sure. All of this future robbed from us, especially that I will never bear his children and grow into parenthood with him – I mean- this is the hardest, most gut-wrenching, horrific, and life-altering reality to live with.
To top it all off, people with their partners beside them and social support (once again, I only had Jacob… so no real friends for me.) People like to think they suddenly know what is best for you. They treat you like a child. They want you to treat it as if it were a divorce instead of a death. EXCUSE ME? I did not fall out of love! THE LOVE OF MY LIFE WAS TAKEN FROM ME. They want you to put that person in the past – like some “ex” – um no fucking way, I still say “we” every time I talk about Jacob – we did something or we liked something or we watched something, or we love this etc. etc. These type of comments from people are beyond hurtful. And so what ends up happening? I feel / we feel more alone and isolate further and further. Just like I have done. I am doing. For me, it is a very scary place to be because… I do not want to live – I do not see a purpose without the love of my life – a whole life without Jacob? My one true love? The best father there could ever be? The most amazing human being the world has ever known. The love, compassion, creativity, curiosity, intellect, beauty, on and on the list can go…The man I dreamed of having children with since I was like… 13. And you want me to keep going? Nope. Count me out. So these comments people “offer up to you” feel like more blood dripping when the dagger is already deep in the chest. Yeah, I am angry. I am sad. I am in a horror film. I have run out of words to describe the miserable pain. And the only thing there is to help me? Bring Jacob back. But that is impossible.
The drill drills on. Grief gives life a permanently provisional feeling. It doesn’t seem worth starting anything. I can’t get up. I sleep, I lay in bed, and I am always restless in my sleep. I used to smoke too many cigarettes to stop the trauma and visions boiling in my brain but now I can’t even muster the strength to walk outside. Up until this I always had too little time. Now there is nothing but time. Almost pure time, empty successiveness.
There ain’t no colors in the sky
And I don’t feel much like singing
Can’t see what for
And there ain’t no comfort in this life
All that I can see that’s ahead of me seems like
Such a chore
Maybe something will happen to make it all better
Maybe something will come along and make me happy
There ain’t no fun in living anymore
And I don’t feel much like living
Can’t see what for
There ain’t no life left in me
I feel a bit funny
Like a ghost
With nowhere to go
My hope has gone and left me
A desperate man
There’s no spunk left in me
I feel so hollow in me
So empty, so empty
So empty, so empty
A big chunk of what I was has gone
And left me a desperate man
Now I’m a desperate man
I’m lonely, scared
Sad, sorry man
And I just can’t see no colors in the sky
There’s color there I’m sure, but it ain’t mine
And it’s made me blind
A desperate man
I’m a desperate man
– Daniel Johnston (listen to the song here) from one of Jacob’s favorite albums of all time, Hi, How Are You. Still on cassette and vinyl in the boxes of our belongings… I remember the day I gave him that album on vinyl and cassette. I said, “should I put it in a separate spot from the rest of our records?” He laughed, “Baby coo – everything around here is OURS – there will never be a day where my stuff and your stuff are separate.” That is when I knew he wanted to be with me forever…I was 19. I knew it for so long myself, but Jacob laughing at the idea of separating our books, vinyl, mugs, cassettes, or anything else – made me truly realize he wanted to be with me forever. I can’t even talk about the memory… just much too depressed this week to use my own words. This song describes the last 14 months almost perfectly, except the two sentences of idealism. I used to listen to this song with Jacob and we would talk about it at length (the sadness, the poetry of it, the desperation in the art)… but now I am living it.
I have just returned from a long weekend of Camp Widow where I met a true extension of Jacob’s soul and someone I feel like could be and is developing into one of my closest friends in life – Élise from Montréal – we have done voice memos/ videos/ or facetime calls nearly every day to talk about our soulmates who are very similar (we also have very similar stories of loss as well) and I am going to visit her in Montréal (she has the sweetest french accent, and is helping me keep my four years of French stay fresh in my brain). I want to visit Montréal and go to all the places Jacob wanted to visit there in Montréal – the places we talked about visiting together (Leonard Cohen’s first apartment, his museum, the park where he spent many hours as a child, wrote many poems and spent time writing his first novel, Beautiful Losers, which Jacob always said was the most underrated book of all time.) He loved that book, and when he gave it to me in Christmas of 2016 he wrote me the most beautiful inscription. I read it every day. And Jacob and I both really wanted to go together (and planned on it in winter of 2018 since we lived so close from Boston) especially after all the years of watching one of his all-time favorite documentaries… Ladies and Gentlemen, Mr. Leonard Cohen (it is free on youtube, trust me – watch it.) Jacob watched it on loop junior year of college and it also changed my life- and I cannot think of anyone remotely close to Jacob on this earth EXCEPT Leonard Cohen, he is truly the only one that reminds me of Jacob. And Jacob agreed in a very humble way – that is why Jacob always turned to art and artists – to find himself reflected. We also wanted to visit Montréal in winter because the documentary was shot during winter. Jacob was so cute like that. Anyway, just the fact that this fellow young widow, who I now refer to as my dear, dear friend who I love with all my heart, Élise (my age, without kids, whose spouse was a writer) knew of Leonard Cohen is beyond belief (that reminds me of another Jacob story…) The fact that I could be in the same room with a friend drinking wine listening to Leonard Cohen blew my mind. Actually, it brought us both to tears. In addition to telling our horrible, painful and miserable stories of loss – but in the backdrop hearing Leonard Cohen – it was as if I was with Jacob. Why this is so important to me is I have never done that with anyone but Jacob in my entire life – because he was my best friend. My only friend. In addition to being my lover and soulmate. I never had a “girlfriend” that was ever even remotely close to a soul like Jacob… this is why I watch and read Leonard Cohen interviews and books all the time – to feel closer to him when Jacob’s words to me, photos of him and me, and videos to me and of us leave me wanting more and more (which is always…) But my darling friend Élise who I met this past weekend had a piece of Jacob’s soul in her – and so much of her is because of her spouse, just like so much of me is from Jacob… For instance, she said she wouldn’t have known about Leonard Cohen if it wasn’t for her darling soulmate Lukas, just as I wouldn’t know of him if it wasn’t for my Jacob. But more on that later (I promise, it deserves its own post – and it will when I visit her in Montréal and see all the places Jacob and I wanted to see, which will be painful but at least I can be with someone who understands, I can cry with and who can hold my hand in my suffering – we can hold each other’s hands in suffering. Jacob would love her and I can hear him saying, “Thank you for helping my baby coos” – I feel like Jacob brought us together in some cosmic way. I felt him while I was with her. A connection that was of course in no way like me and Jacob’s but it felt like Jacob was there if only for a few moments. How wonderful to feel that way no matter how fleeting – a way I never thought was possible.
So, I also started an intense procedure this week on my brain-super fun, right? No. Super fucking shitty. And painful. Feel free to ask me about it in the contact section of this blog. I’ll probably post about it when I finish. So, mentally, I am honestly not ready to talk about or even process all that happened in the last week and a half… but one thing I can offer you is something I heard this past weekend which was: tragedy + time = comedy. This is a phrase Jacob used to tell me a lot… so it was kind of a Déjà vu moment. In fact, I remember Jacob saying this is why the Jewish people are so goddamn funny – they have been through so much tragedy over time. It is a really hard concept for me to believe now, but I kept being reassured by other widows that will change. Like I said, hard to believe. I am really sick of “things will never get better, but different bullshit”. BUT – I am going to give you an excerpt from Kelley Lynn Shepherd’s book (who I met at Camp Widow in Toronto, and who also did the wonderful Ted Talk, “When Someone You Love Dies, There Is No Such Thing as Moving On” – she is very quick witted and makes you laugh at the RIDICULOUS SHIT people do/act/say/think/project while you are in grief. Jacob would find this story incredibly funny (and her incredibly funny) and I actually laughed out loud because I have gotten similar comments in the vein of “Be glad you have your health!” FUCK YOU. This story seriously made my day – week – month? And I could hear Jacob laughing – also, my mother-in-law was the first one to witness me laughing at it, I couldn’t even get the sentences out they were so funny and close to home. She hasn’t seen that since Jacob died. I didn’t think I could even laugh that hard anymore – not without Jacob with me every day. So, enjoy…yeah, I hate that word too.
Excerpt from the book, My Husband Is Not a Rainbow: The Brutally Awful, Hilarious Truth About Life, Love, Grief, and Loss by Kelley Lynn Shepherd (which by the way she is someone I completely relate to on so many levels of her personal grief story – robbed of children, a future, and growing old together without the only person she wanted those wonderful things with.) Quick aside: Jacob used to say, “I think you and I will be great at the whole becoming senile together thing – we are already so cynical already.” I always laughed when he said that and responded that, “We are 65-year-olds trapped in 25-year-old bodies Jakey.”
Okay here is the excerpt – I hope you find it as funny as I did. And validating for that matter…
“… Months ago, I posted on Facebook this: “Need to attempt this life thing again without Don. Not looking forward to it. Wish me luck!” A lot of people did wish me luck, told me to hang in there, and a bunch of other really nice things. And then there was this comment:
“Be glad you have your health, Kelley. Remember that some are living with diseases which make it difficult to just get out of bed. I’ve got rheumatoid arthritis, but some have it worse.” Well, alrighty then. What the hell is THAT supposed to mean? What does your rheumatoid arthritis got to do with my husband’s death or ANYTHING for that matter? Nothing. I don’t see the connection. Because there isn’t one. They are two completely different issues. It makes zero sense to bring up one when talking about the other. I suppose the purpose of saying something like that is to make me feel “grateful” for all the things I could be dealing with that I’m not dealing with. But honestly, I never saw the point to that argument. It’s like when you were a kid, and you didn’t want to eat your vegetables, and your mom would say, “Eat everything on your plate! There are starving children in Africa!” Okay. Whether or not I eat my green beans, they will still be starving. My eating or not eating my food has nothing to do with them being starving. Starvation will always be an epidemic, and the only way to combat it is to help them! Send donations. Put programs together to help solve the ongoing issues. And guess what? These beans are still disgusting, and I’m still not eatin’ em.
So if I tell you my husband just died and you say, “Well, at least you don’t have rheumatoid arthritis!” I’m going to look at you like you’re fucking nuts. Unless you leave it as a comment on Facebook. In that case, I will just THINK you are fucking nuts and say nothing and then write about it in my book later on. No, I don’t have arthritis. I also don’t have lupus, lyme disease, or a weak bladder. And hey, at least I am not headless! You know, some people are walking around earth without a HEAD! So be grateful you have a head! And legs. There are some people who have no legs. And if they grieved the loss of their legs, would you say to them, “Well, be grateful you have a torso! You know, some people don’t have a torso! Or eyes. At least you have eyes! I know a guy with no eyes, no torso, no legs, no arms, and no face. He’s just a foot. So be grateful. You could be just a foot.”
I mean, where does it end? Your problems are your problems, and my problems are my problems. The death of my husband is what I happen to be dealing with. He is gone forever, and my life is forever different, and every day, I’m stuck trying to get up and figure out another reason why I should stick around. I’m sorry if, at the moment, I’m not feeling very grateful for my lack of rheumatoid arthritis.
“I don’t understand the need that some people have to compare pain. If I tell you my wife died just 4 weeks after her diagnosis, and you come back at me with some story about someone you know who suffered longer with the same illness before dying- what am I supposed to say? “Okay – you win! That pain is worse than my pain.” There are no prizes when everyone is dead.” – Joe Harris.
That quote is how she ends the segment –
Jesus Christ, thank you, Kelley – I get this shit all the time- not only the “be grateful you have your health” but the “people have suffered much worse, and for much longer” or the “people have suffered much worse and how selfish can you be lying in a bed for 14 months doing nothing?” or “people have suffered much worse with much fewer resources and have gotten through it.” All from the same goddamn person.
I hope those of you in mourning found this excerpt somewhat funny and at least a slight distraction, validation, and connection to the author and fellow widow. She gets it. She has turned it into humor. And I can hear Jacob’s laugh.